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Children's university on the pulse of current dementia research

Children's university on dementia picks up on the results of the participatory research project "Specialized outpatient support for people with dementia and their families" (SABD-Fam)

Under the title "Dad and mom have little time because grandma is so forgetful", the children's university series on December 10 was dedicated to the topic of dementia in a child-friendly way. Dr. Doris Arnold, lecturer for special tasks in nursing science at the Department of Social and Health Care, together with Heike Dauser and Martina Felber, dementia consultants from Malteser International North and East Württemberg, as well as Bianca Knerr-Müller and Daniela Herda from Malteser International Hesse, Rhineland-Palatinate and Saarland, explained to the children what it means to live with dementia. With vivid stories, child-friendly explanations and practical exercises, the experts helped the children to understand what happens in the brain with dementia and what life is like for people with dementia.

Research project "Specialized outpatient support for people with dementiaand their families" (SABD-Fam)
Dr Doris Arnold and her Malteser colleagues drew on the findings of a research project whose final report is currently being published: the model project "Specialized outpatient support for people with dementia and their families", or SABD-Fam for short, aims to provide stable, person-centred care for people with dementia at home while effectively supporting their relatives.

The sub-project carried out at the Ludwigshafen University of Business and Society (HWG LU) focused on the development and implementation of SABD-Fam: two experienced caregivers first underwent further scientific training and then accompanied people affected by dementia and their families as "dementia consultants". Among other things, they used understanding diagnostics. This enables them to identify the needs of people with dementia that are behind so-called "challenging behavior" and make targeted suggestions for solutions. During the trial, the two dementia consultants continuously developed the service as co-researching experts based on their experience in close collaboration with Dr. Doris Arnold.

The SABD-Fam care concept was implemented in two Malteser facilities in Ellwangen in the Ostalbkreis district: in a "dementia service" (offer for support in everyday life according to § 45a SGB XI) and in an outpatient care service. In addition to providing specialized support to families, the dementia consultants also held case discussions with individual people with dementia they were supporting in the facilities. They presented particularly complex cases in interdisciplinary case discussions and discussed them together with a psychotherapist, a geriatric specialist and a social worker.

Background:
The project "Specialized outpatient support for people with dementia and their families" (SABD-Fam) was commissioned and financed by Malteser Hilfsdienst e.V. and supported by the Veronika Foundation. The implementation of the 18-month project (November 2023 to April 2025) was carried out by Malteser Hilfsdienst. The Ludwigshafen University of Business and Society, under the direction of Dr. Doria Arnold, was responsible for the development and implementation of the SABD-Fam care concept; the German Center for Neurodegenerative Diseases (DZNE), Witten site, carried out the accompanying process evaluation under the direction of Dr. Bernhard Holle.

Further information at: www.malteser.de/standorte/ellwangen/sabd-fam.html

Contact:
Ludwigshafen University of Business and Society
Department of Social and Health Care
Dr. Doris Arnold
Lecturer for Special Tasks in Nursing Science
Tel. 0621/5203-570
doris.arnold@ 8< SPAM protection, please remove >8 hwg-lu.de

The speakers at the children's university on the topic of
The speakers at the children's university on the topic of dementia (Image: HWG LU)
Children wear special simulation glasses
Special glasses are used to recreate the living environment and sensory perception of people suffering from dementia. (Image: HWG LU)
Children at wooden boxes with eating utensils
The speakers also have special boxes with them to recreate the world of dementia in an understandable way - here while eating. (Image: HWG LU)
Close-up of box with dinnerware
Close-up of the box (Image: HWG LU)